Erica here! I'll pick up where my mom left off...
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Getting IV started |
Around 5pm, a doctor came in to tell us sbout our evening plan. They were going to wean me off my medicine to help provoke seizuers to happen. They also had informed me that I will be needing an IV, just in case I have a terrible seizure and need some emergency medicine. The IV nurse came in and tried the back of my left hand... and my vein collapsed. So he tried my other hand and... that one collapsed too. Needless to say, I was really upset and very sore. So, the nurse said we'll take a break and get another nurse to try. While we were waiting for the other nurse, I had some visitors arrive. Mrs. Tracey, Sanne and MJ couldn't have come at a better time to cheer me up. We all got settled in and the other nurse arrived to start my IV. My friends stayed to support me and the nurse got it on the first try.
We all decided to order breakfast for dinner! while we were waiting, we
listened to music, played a game of Balogna, and laughed a whole lot! We
had a nice meal, and I enjoyed their visit. They stayed until arround
7:30pm and left, because they had a long ride, and because it was a
school night. :) After they left, we went to bed right away and watched
the lightning storm outside our big window. I had a good night sleep,
however, mom did not because her couch-bed was uncomfortable.
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Add caption |
Okay...I'm going to let my mom take over writing now!
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Science HW & Pedicure |
Erica and I spent the day playing cards and games, doing school work, replying to emails, and even pedicures. The doctor came to discuss the interesting and notable observations made while she sleeps. Her left side of brain has very different patterns compared to her right brain. We also discussed the plan for the day to provoke seizures. Continue to wean off meds and start sleep deprivation. At about 2:30, Erica had a seizure. She felt it coming on and pressed the alert button. After looking at the record on the EEG, it was determined to be a small 50 second seizure. One thing that I learned when viewing the brain activity was how to actually tell when the seizure ends and recovery begins. When Erica passed out, it was clear in the brain activity that it was the end of the seizure.
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Getting fitted for a new cap! |
So we are 1 seizure down. A few more to go. Going to be a long night. She is limited to no more than 4 hours of sleep in a 24 hour time period. Shouldn't be a problem for me...the bed is incredibly uncomfortable. Maybe I'll try the chair tonight.
Carl and Sam arrived at dinnertime. We had a great visit. Sam loved all the buttons on the bed, eating dinner in bed, and the chocolate cake too! As I type, the kids and Carl are watching Antique Roadshow. The episode is from 1998 and they are replaying it with then and now assessments. The math teacher in me keeps wanting to shout "What is the percent of increase or decrease in value over the past 15 years?"
Okay...signing off for now. Good night!
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