Wednesday, August 14, 2013

Highs and lows this week

Monday was a rough day.  During the day, Erica had several auras (small seizures) that were intense at times.  She rested for a bit, but was excited to go to her Tae Kwon Do class so she could test for her board break.  She had a great class, but in the last 10 minutes while she was preparing for her board break, she had seizure.  Needless to say, she was so upset that the seizure happened in front of her peers and parent audience.  She slept on the way home in the car and went straight to bed when we arrived home. 

Erica woke to a beautiful sunny morning, much like her outlook.  Even though she was coming off a very difficult day, she maintained a positive outlook and processed the previous day's events well.  She amazes us everyday with her courage and perseverance.  Although difficult at the time, Monday's seizure reminded us how lucky she is to have wonderful, supportive, understanding, and compassionate friends and instructors at the dojo (Trans Martial Arts).  She knew that she would be uncomfortable at first returning, but she knew that they would all understand. 

Tuesday was a better day for Erica with no big seizures, just auras.  She received her new 7th grade schedule and locker assignment in the afternoon.  She was ecstatic that her locker was not right next to her mom's classroom! Although she is excited for the new school year to begin, she has quite a bit of anxiety about starting the school year, especially after Monday's episode. 

Wednesday turned out to be a great day from start to finish.  Knowing that seizures are triggered by lack of sleep, we decided to modify Erica's school schedule so that she has a late start.  She will arrive at school with Sue at 9am until after she has recovered from surgery.  We also received a phone call from Children's Hospital to change her extended EEG to a closer date so that we can speed up the planning process for surgery.  They had an opening on August 26!! We are so excited to not have to wait until October. 

Erica also decided to return to Tae Kwon Do for a class with hopes to finally complete her board break test.  She was nervous to face her friends and instructors, but she held her head high and exhibited great bravery.  It was a wonderful class full of smiles, giggles, and yes...board breaking.  She kicked through the board with great determination and on her first try. 

So proud of my strong, optimistic, and determined girl!  She has taught me a thing or two about courage. 

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