Children's Hospital - Day 3

We woke this morning at 6 am after only having 4 hours of sleep, per doctors orders of sleep deprivation.  Tiredness is most certainly a trigger for seizures.  Both of us were grumpy and utterly exhausted.  When the neurologist checked in with us in the morning, we were surprised to hear that Erica had a seizure in her sleep.  The information they have received and learned thus far:
 - 1st night's sleep showed irregular patterns in her left temporal lobe.
 - seizure from 2nd day appeared in left temporal lobe.
 - seizure during 2nd night sleep also occurred in left temporal lobe.
These consistencies are great and happening in the same region as the tumor.

Around lunchtime, a neuropsychologist arrived to start intake questions for Erica's nuero-psych test in a few weeks.  They wanted to get some general background information about Erica's academic and social proficiencies to start a baseline measure. 

Since we've not been able to sleep or nap, we've filled our time with cards, games, a small attempt at school work, and a lot of classic movie watching.  Erica watched for the first time Pretty in Pink, Girls Just Want to Have Fun, and Footloose.  She laughed more at the outfits and hairstyles than she did the actual comedy.  She wanted to know why the 80s were so weird!

Around dinner time, she had a chance to Face Time with some friends and family.  Soon after her conversations, Erica yelled to me that she was having an aura.  I pushed the event button and by the time I reached her, she was in a full blown seizure.  It was the most intense one we've seen since our stay at the hospital.  It was a good one to capture on video and EEG.  She took a short nap after the seizure, but had to be woken since she is still on sleep deprivation orders.  Since she napped for about an hour this evening, we will most likely be limited to less than 4 hours tonight.  Ughh...

After waking Erica from her post-seizure nap, she was a hot mess, literally and figuratively.  She was SO exhausted, aggravated, and uncomfortable.  There wasn't much I could do to make things better for her.  Then there was the most timely delivery...chocolate covered strawberries sent with love from Grandpa and Grandma Martino.  Thank you!