Update 9/13

We started this week off with a visit to urgent care on Monday evening. Erica hurt her thumb at Tae Kwon Do.  After x-rays, no fractures were found, just a bad sprain.  She struggled through the week with her sore thumb, but is able to move it fairly well this morning.

Thumbs up???

On Tuesday, we started Sam back onto his gluten-free and dairy-free diet.  After a doctor's visit, we decided to give it a try another time.  His overall emotional well-being appeared to be better when he was on his restricted diet.  We'll see how it goes!

Since Erica's hospital stay for the EEG, her medication has been modified slightly.  She has added a third anti-seizure medicine, and reduced the second medication by 1/5 (not much really at all).  We have not seen any improvement in her seizure frequency; in fact she has had more seizures...a seizure just about every day and many auras throughout.  Tuesday was a difficult day for Erica, starting out with a seizure in her first class period.  She napped for a few hours in the nurses office, had lunch with Mrs. M in the office, and returned for her last class of the day.  She also had many strong auras throughout the week which prompted a visit to the nurses office.  We are so thankful for Erica's friends, teachers, and office friends.  She is so well taken care of!

We received a call from the pre-surgery coordinator at Children's Hospital on Thursday.  Erica's case was discussed at the neuro team meeting on Tuesday and next steps have been put in motion.  We should expect a call from the MRI scheduling to schedule a functional MRI.  Additionally, an appointment has been scheduled for Mon, Sept 16 at 2:30 for us to meet with Dr. Park (Erica's neurologist and epilepsy specialist) and the neuro surgery team. 

As mentioned in the national news, Northern Colorado has been hit with some very rainy conditions, thus causing much flooding.  Hardest hit areas as of this morning are Boulder and Lyons.  Fort Collins seems to be doing okay at this time, but schools have been closed today (Friday) as a precaution due to flooded roadways.  The kids and I were delighted to be able to sleep in a bit.  Sam is right now enjoying the rain outside digging for worms. 

Since Sam's baseball game has been cancelled this weekend, we have very little on the agenda.  Looking forward to a lazy weekend before the busy week ahead.  Love to all!