We are hopeful that Erica will be seizure and tumor-free before the end of the month!
Upcoming appointments:
- Tues, Oct 1: Pre-Wada Test Appointment
- Thur, Oct 3: Wada Test (See previous post for more information.)
- Wed, Oct 23: Visualase Surgery to remove tumor!!
We are expecting that there will be many appointments prior to the surgery on the 23rd, but we are happy to hear that surgery has been scheduled!
It has been a challenging week overall. With Erica struggling with a sprained ankle, she also experienced many seizures throughout the week. She has reached the maximum dosage for her new medicine (Zonegran) last Friday, and almost like clockwork, her seizures increased in frequency towards the end of the week as if her brain was saying, "You can't trick me for too long!" She experienced several seizures at school, leaving us all (Erica, parents, and teachers) anxiously awaiting an end to this all. A little more than three weeks to go!
Again, I can't be more thankful for good friends, family, and amazing strength from Erica and our family. Many have asked how we are really holding up. Honestly, the reality is we somehow manage to muster up the strength to get through some of the most challenging times. For us, it has been hope, friends, passions, and distractions. In the end, it all will make us stronger, more compassionate, and more appreciative. I can't go without saying and thinking about others that are less fortunate than Erica. She has a brain tumor and condition that is curable. My heart aches deeply for those who still struggle for a cure.
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