10 days and counting!

Erica had a fairly challenging week overall.  Besides several early morning visits to the eye doctor for vision field tests (which she claims are super boring to take), seizures have been sneaky lately.  She has not been experiencing an "aura" before she has a seizure, which makes it so that she has no warning and way to alert someone that a seizure is about to happen.  She is having seizures daily, sometimes two or three.  I called Erica's neurologist to inform them that seizures have been increasing again.  Erica has weaned off her second medicine, but still is taking her first and third.  Because she is taking almost the maximum allowable dosage for her weight, we were only able to modify and increase her medicine a bit. She has been really frustrated and tired of the massive amount of anti-seizure medicine she takes each day.  I am so proud of how positive she has remained through it all, but I totally understand why she is cranky lately.  Besides the amount she has to take and the yucky side affects, she doesn't feel they are helping reduce seizures much at all.   

480 pills...to be consumed in one month!

AM and PM dosages

 So we are counting down the days till surgery and an end to our lives dictated by seizures.  At least the doctor appointments this week got us up early enough to see some beautiful Colorado sunrises. 

Beautiful fall sunrise in our front yard!

We are looking forward to a week without any doctor appointments.  I guess this will be the calm before the storm. Sue's Mom, Sally (Mimi), arrives on Thursday from CT.  She will be staying for 10 days and helping out.  We are REALLY looking forward to some much needed mom/grandma time.